AIDSTAR-One Adolescents Living with HIV Toolkit

Increasing numbers of perinatally infected children are surviving to adolescence and adulthood. This group is emerging as a unique population and a unique challenge for policy makers, programmers and service providers, thus requiring attention and a stronger understanding of their unique needs to support their continued health and development. This toolkit is designed to support healthcare and community care providers, families, caregivers, and the adolescents themselves with the transition of care, support and transition services from pediatric to adult care. The collection includes the toolkit and trainer's manual, along with Microsoft Word versions of the individual tools, which can be adapted for different country contexts. 

Transitioning of Care & Other Services for Adolescents Living with HIV

Transitioning of Care & Other Services for Adolescents Living with HIV Toolkit

Increasing numbers of perinatally infected children are surviving to adolescence and adulthood. This group is emerging as a unique population and a unique challenge for policy makers, programmers and service providers, thus requiring attention and a stronger understanding of their unique needs to support their continued health and development. This toolkit is designed to support healthcare and community care providers, families, caregivers, and the adolescents themselves with the transition of care, support and transition services from pediatric to adult care. A trainer's manual for health care providers is also included.

Transitioning Care, Support, and Treatment Services for Adolescents Living with HIV

Transitioning Care, Support, and Treatment Services for Adolescents Living with HIV

The PEPFAR PMTCT/Pediatric Technical Working Group and USAID's Africa Bureau hosted a field-driven learning meeting for U.S. government staff and key African partners from February 7-10, 2012, in Gaborone, Botswana. The consultation was held in response to calls from practitioners, government officials, and programmers to share knowledge, experience, and resources on how to best care for the increasing numbers of perinatally infected children surviving to adolescence and adulthood. This group-emerging as a unique population and a unique challenge for policy makers, programmers, and service providers-requires greater attention and a stronger understanding of their unique needs to support continued health and development. The meeting highlighted programs in eight countries that are facing and responding to the needs of adolescents living with HIV and the gaps and opportunities in transitional services.

Cover of Transitioning Care, Support, and Treatment Services for Adolescents Living with HIV

Transitioning Care, Support, and Treatment Services for Adolescents Living with HIV

Advances in antiretroviral therapy (ART) and improved health services mean that increasing numbers of children infected with HIV perinatally will survive into adulthood. This group is emerging as a unique population that presents a special challenge to policymakers, programmers, and service providers, who need to understand this population’s special needs in order to support their continued health and development.

Cover of Transitioning of Care and Other Services for Adolescents Living with HIV in Sub-Saharan Africa

Transitioning of Care and Other Services for Adolescents Living with HIV in Sub-Saharan Africa

Sub-Saharan Africa has the highest HIV burden in the world, with 67 percent of the estimated 34 million people living with HIV. Globally, children under 15 years are particularly hard hit: 3.4 million are living with HIV, 90 percent of whom live in sub-Saharan Africa (WHO 2011a).

Monitoring the use of the modules

Transitioning of Care & Other Services for Adolescents Living with HIV Toolkit Checklist 1

This checklist should be utilized throughout adolescence to track which modules in this Toolkit have been introduced. It can help ensure that these components are reviewed as needed to increase the adolescent’s and the family/caregiver skill set and knowledge base.

Comprehensive Transition Checklist

Transitioning of Care & Other Services for Adolescents Living with HIV Toolkit Checklist 2

This checklist provides a format for the provider to establish goals for self-management tasks with the adolescent as they progress towards transition of care. Transition is dependent upon the adolescent’s knowledge surrounding HIV, preventive health behaviors, ability to manage psychosocial issues, and achievement of self-management goals. It will be helpful to provide updated copies to the adolescent and the family/caregiver as new self-management goals are established. Encourage the adolescent and his or her family/caregiver to use the comprehensive transition checklist to reinforce goal-setting at home.

Health Care Provider/Community Care Provider Transition Readiness Checklist

Transitioning of Care & Other Services for Adolescents Living with HIV Toolkit Checklist 3

This checklist provides prompts and links to critical tools within this Toolkit that can assist the provider in assessing if the adolescent is transition ready. See the key tools referenced in this checklist to assess if the adolescent client is transition-ready.

Family/Caregiver Checklist

Transitioning of Care & Other Services for Adolescents Living with HIV Toolkit Checklist 4

This checklist provides information to the family/caregiver on how to support the transitioning adolescent and should be provided to the family/caregiver at the beginning of the transition process.

Adolescent Checklist

Transitioning of Care & Other Services for Adolescents Living with HIV Toolkit Checklist 5

This checklist assists the adolescent in thinking about his or her self-care tasks. The adolescent should be able to accomplish all of these tasks prior to transition.